The national document of rare diseases was communicated to all executive bodies

According to Fars News Agency’s Health Group report, with the follow-ups of the Chairman of the Board of Directors of Iran’s Rare Diseases Foundation, the National Document on Rare Diseases was notified to all executive bodies of the country by the order of the President and the First Vice President.

Yaser Davodian, Chairman of the Board of Directors of the Rare Diseases Foundation, while thanking the government for accompanying the country’s rare patients, said: With this notification of the First Vice President and the implementation of this document, many problems of rare patients will be solved and their demands will be fulfilled.

Davodian added: It was rare for the 13th government to send this Eid document to patients who had not received their legal rights for years.

He added: From the beginning of the 13th government, the situation of rare patients was followed by the president and the government board, and within a year, this document was officially announced by the first vice president to reduce the various aspects of life problems of rare patients.

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