Obtain your short request from the Ministry of Health and the Welfare Organization / medicine for patients with “achondroplasia”

According to the reporter Fars News Agency Health GroupPeople with achondroplasia complain of medical problems, a genetic condition that is often associated with bone disorders. Children born with the disease are short, which makes their lives very difficult.

The disease begins during the child’s development and prevents the cartilage of children from turning into bone in the body. According to some sources, 1 in 10,000 children born with the syndrome is more likely to be born to parents with the syndrome than other families.

Recently, some of these patients have launched a scan in the Fars Man Man system of Fars News Agency, during which they demand the supply of medicine for this syndrome. This newly created scan has been able to attract the signatures of more than 2,000 Fars audiences.

Regarding the problems faced by patients, the director of this scan told a Fars reporter: “Achondroplasia syndrome is a rare disease that has been registered in the Foundation for Special Diseases.

He added: “A number of children have this syndrome and there is no definitive cure for it, but it is the only cure for a drug that an American company has been working on since 2012, and it has been commercialized for several months and has received the necessary approvals.”

The director of this Fars Pooyesh Man continued: This medicine is the only treatment for these children that we need to import.

“Welfare has not been able to provide adequate support for these children. These children often face physical problems that sometimes lead to their death, but this drug prevents these children from dying in infancy and their short stature problems,” he said. Destroy.

This Fars audience member continued: These children are very smart and have high self-confidence, but in adulthood, their self-confidence decreases due to the problems they face.

He stressed: the cost of importing this drug is very high and families are unable to provide it. This medicine can help our children a lot. If they take this medicine, they will grow taller and many of their physical problems will disappear.

Fars News Agency will follow up on the problems of these patients in the coming days.

End of message /

You can edit this post